Osler-Weber-Rendu Syndrome

Nosebleed New York NY

Osler-Weber-Rendu syndrome is a rare genetic disorder affecting the blood vessels in the body. Osler-Weber-Rendu syndrome is also referred to as hereditary hemorrhagic telangiectasia (HHT). These abnormal blood vessels or arteriovenous malformations (AVMs) can cause bleeding both into the skin and inside your body. The most common areas are the nose, lungs, liver, and brain. Read below to recognize the symptoms associated with Osler-Weber-Rendu Syndrome.

Osler-Weber-Rendu Syndrome Symptoms

Symptoms of Osler-Weber-Rendu syndrome vary greatly even amongst family members with the syndrome.

  • Nosebleeds- could happen daily and start in childhood
  • Shortness of breath
  • Headaches
  • Lacy red vessels or tiny red spots (telangiectases) found on the lips, face, fingertips, tongue, and inside the mouth
  • Seizures
  • Iron deficiency anemia

Obtaining an accurate diagnosis is vital for treating Osler-Weber-Rendu syndrome. Dr. Gregory Levitin at the Vascular Birthmark Center specializes in diagnosing vascular malformations. Diagnosis usually begins with a physical exam and reviewing the patient’s medical history and symptoms. The presence of symptoms like telangiectases and frequent nosebleeds are the most common symptoms of Osler-Weber-Rendu syndrome. Imaging tests like MRIs and CT scans are used to look at the problems in the brain and lungs.

Osler-Weber-Rendu Syndrome Specialist in New York

Finding the right doctor specializing in diagnosing and treating Osler-Weber-Rendu syndrome can be difficult. Dr. Levitin at the Vascular Birthmark Center can diagnose and treat all aspects of the disorder. Once properly diagnosed with Osler-Weber-Rendu syndrome, Dr. Levitin will primarily look at the treatment of the abnormal blood vessels and how to manage the condition. Treatment will be directed towards blood loss reduction, minimizing the abnormal blood vessels, and preventing any common complications associated with Osler-Weber-Rendu syndrome.

If you have any questions or have noticed any symptoms that may be associated with Osler-Weber-Rendu syndrome, contact Vascular Birthmark Center today to schedule an appointment.

Posted on behalf of The Vascular Birthmark Center: Gregory M. Levitin, MD

200 W. 57th St., Suite 1410
New York, NY 10019

Phone: (212) 316-0616

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The Vascular Birthmark Center: Gregory M. Levitin, MD

4.8 / 5.0

Based on 27 reviews

Abril M.

Dr. Levitin is very knowledgeable, compassionate and professional. Five years ago, I needed to find information about a birth mark that my newborn daughter started to grow a couple days after birth. I was afraid, I did not feel like I got any clear information about it through my insurance; also, they did not offer any course of treatment for it. I started to look for information, the birthmark was growing each day, information was scarce and I just got more scared. Finally, I found a video in Youtube from a grandmother who was very grateful after finding treatment for her grand daughter through The Birthmark Foundation. It was a huge blessing to me and my family. I found Dr. Levitin, I contacted him thinking he probably would not even answer. I was wrong, he kindly answered promptly, got in touch with me and soon he had a plan : ) I went to see him at the Birthmark Center in Los Angeles. He explained everything in a way that it was so clear to understand, no question I made was insignificant and his answers were each very informative. I really never have had an experience with a doctor who explains and speaks in such a way. I left his office knowing that my daughter was in the best hands and the best care. I first thank God for the Birthmark Foundation, a great organization with the highest quality of doctors. Also, a very special thanks to Dr. Levitin for all his help and kindness, for listening to my concerns and answering each and every question. And last, but no least, to the Birthmark Foundation Center in Los Angeles : ) I hope many children can find help/care in this place as I found it for my daughter. Thank you forever.

Ryan E.

I will be telling tales of the good doctors compassion till time comes to an end. Because of Dr Levitin, I have more confidence in my every day life. He was fast, knowledgeable, precise and all with a disarming sense of humor. Two thumbs up!

Carla M.

I wanted to show you how much better Hailey's tongue looks and let you know her speech has already improved so much!!! Her speech teacher is thrilled!!!! Thank you so much for everything you did for her. You are an excellent surgeon with a great bedside manner- we are forever grateful to you!!! We are so appreciative!

Danielle L.

we are forever grateful for Dr. Levitin. My daughter Lena had surgery to remove her hemangioma that was located on her forehead at just 6 month old. she healed beautifully and we couldn't be happier with how minimal her scar is, even almost 4.5 years later. Dr. Levitin is caring, compassionate, and such a great doctor/surgeon overall. He had our daughter's best interest and I knew she was in good hands. I highly recommend him any chance I get!

Chris

My name is Chris and I was recently treated for an AVM on my forehead by Dr. Gregory Levitin of New York (New York Eye and Ear Infirmary). Thankfully, I live within a few hours of NYC. In brief, I would like to say that Dr. Levitin is very capable doctor with a lot of experience with AVMs. He responds quickly to e-mail, texts, and phone calls. He accepts insurance. He takes a "team approach" and will be your "QB" and involve other specialists as necessary. In my particular case they were Dr. Raj Shrivastava (Mt Sinai) and Dr. Raphael A. Ortiz (Lenox Hill) in NY. I recommend contacting Dr Levitin for a consultation if you suspect you have an AVM. All 3 Drs are just good people. When I spoke to them, they treated me like like an equal. I felt like they were advising me as a close friend or family member. Like many that suffer with AVMs I was at first mis-diagnosed. What was thought to be a just a simple cyst turned out to be an AVM. Surgery to remove the cyst made the AVM about 5x bigger. My treatment entailed a few MRIs and CAT scans to determine what was going on and the treatment plan. This was followed by consultation with the 3 Drs mentioned above and finally a 2-day procedure. On day 1 Dr Ortiz embolized the AVM. On day 2 Dr Levitin and Dr Shrivastava removed the AVM from my skull and put some metal mesh there to fill the "hole". It has been 6-months since the surgery and so far I have not had any recurrence. In honor of Vascular Birthmark Awareness Day and to thank these Drs for all they have done for me, I just want to give everyone a solid reference. Finding the right doctor for this type of stuff makes all the difference.

Valle S.

I just discovered this page i have also a birthmark I always experiences bully because of this. I don't know what kind of birthmark is this if it is harmful ? I hope Dr. Levitin notice this message in this way I think he can help me :) :) #DrLevitin

Alicia M.

This year marks the 10th that I contacted VBF for help. Since then I have been under the care of Dr. G Levitin and Dr. R. Ortiz, they are my guardian healing angels! Thanks VBF for not only helping me but also for letting me be a volunteer in the foundation whenever I am needed. A Big Hug to all from MIAMI... Alicia

Alexander G.

Totally positive experience. Dr. Levitin is a great professional. He has diagnosed and treated my nose breathing problem, significantly improving my quality of life. Office staff is very professional. Appointments always kept on time. Strongly recommend.